LocalSYR

22q at the Zoo Worldwide Awareness Day

Zoos around the world were helping to spread the word about a common, but little known genetic disorder called 22q, which affects 1 in 4,000 live births.
SYRACUSE (WSYR-TV) - Zoos around the world were helping to spread the word about a common, but little known genetic disorder called 22q, which affects 1 in 4,000 live births.
 
From heart defects and immune deficiencies to learning disabilities and behavioral problems, 22q can have lasting affects.
 
On Sunday, kids with 22q were invited out for a day of fun at the Rosamond Gifford Zoo, while parents had a chance to meet and find support that you can't always get from your doctor.
 
“This is all new to us so it’s nice to know that there are other families out there that are in the same situation that we are and maybe help us with questions that we might have or things that might come up that we could just use some parental advice on versus medical advice if you will,” said parent…
 
"Most people here today never met anyone else with this condition and there were friendships forged here today and hugs and numbers exchanged," said 22q Center Director Eileen Marrinan.
 
The 22q Center provides resources and services locally to families affected by 22q. It is a collaborative program between Syracuse University and Upstate University Hospital.
 
For more information, click here.

Page: [[$index + 1]]