CENTRAL NEW YORK, N.Y. (WSYR-TV) — May is Lyme Disease Awareness Month and members of the Central New York Lyme Alliance are getting personal, sharing their struggles hoping to help others.
It only takes one tiny tick to change your life forever. It’s a reality Jonah Cummings lives every day.
“For me, it all started with chest pain and it was on a trip, a family vacation to Cape Cod,” said Cummings.
Cummings was an otherwise healthy teenager. His world flipped upside down in an instant.
“Brain fog and crushing fatigue and anxiety,” he said were just a few of his symptoms. He has spent years battling Lyme and is currently in rigorous treatment.
Royale Scuderi has a similar story. She’s been living with Lyme for 10 years.
It was a long, torturous journey. Misdiagnosis, a string of doctors, not much was known, a very long and complex treatment.Royale Scuderi
Now, Scuderi is the Central New York Lyme Alliance executive director. She and Cummings are working with the rest of the team on the Alliance to make sure the community is tick aware.
It’s a real danger and Central New York is a hot spot. So the CNY Lyme Alliance is working with doctors, Lyme warriors, and researchers to connect the dots so more people will know how to protect themselves and will know what to do when they find a tick.
“My hope is in that, that we can educate people, educate healthcare providers because I don’t want anyone to have to go through what I went through,” Scuderi said.
Check yourself, most importantly, every time you come back in from an outdoor activity for those ticks.Jonah Cummings
For those who are fighting Lyme, the CNY Lyme Alliance wants you to know, there’s always hope.